Millions Missing is an ME Awareness protest at Irish Government Buildings in Dublin on the 11th May from 11.00-15.00
A group of Irish Myalgic Encephalomyelitis (M.E.) patients, their carers and advocates will be holding a Millions Missing demonstration outside Dail Eireann, Dublin, Ireland On Thursday May 11th. We will highlight the total lack of appropriate medical and support services for those with this illness and we would very much like to ask your support.
To inform you briefly:
Myalgic Encephalomyelitis (ME) is a complex, acquired disease involving profound dysregulation of the central nervous system, immune system, energy metabolism and cardiovascular abnormalities. The main symptom is a low threshold of fatigability. It shows an inability to produce sufficient energy on demand. There are measurable adverse responses to normal exertion, resulting in exhaustion, extreme weakness, exacerbation of symptoms and a prolonged recovery period.
Currently there is no known cure, but early intervention and appropriate treatment strategies may lessen severity of symptoms. Restoration to full health and function is rare. Prognosis for an individual cannot be predicted with certainty. Children can be very severely afflicted.
All of this confusion leaves patients and their carers extremely vulnerable.
Many thanks from all of us living with M.E. in Ireland.Further details:
- Facebook Event Page
- Twitter #MillionsMissingDublin
- Blog Millions Missing with personal stories etc
- Contact me if you need further information, talk to any of us for radio, newspaper or TV interview, and I will do my best direct you to the appropriate person.
- A big THANK YOU to City Print in cork which are supplying us, free of charge, with 10 posters.
- Thank you IMET (Irish M.E. Trust) for funding the 200 flyers.
- Anne Rabbitte Galway East TD
- Daragh O Brien
- Clare Daly will be there or defo someone from her office
- Deputy David Cullinane says he will 'definitely try to make it
- Maureen O'Sullivan says she has it in her diary
- Mick Wallace - if not himself he will defo send someone from his office out
- Tommy Broughan will try his best
- Michael Healey Rae says he will do his best to be there, and he will bring up our campaign in the Dail when they resume after Easter which is May 2nd.
- Michael McGrath will do his best
- Peter Burke - TD, Longford/Westmeath.
- Finian McGrath Minister of State for Disability Issues. He asked me to remind him a week beforehand
- Jack Chambers
- Mick Barry confirmed he has put the date in his diary
- Paul Kehoe (asked for postal address)
- Maria Bailey will do her best to come out and see us
- Brendan Howlin - do his best if Dail business allows
- Michael Collins has it marked in his diary
- Seán Crowe (Sinn Féin) will pop out to us on the 11th
- Thomas Pringle hopes to be there
- Jackie Cahill will defo meet us
- Sean Haughey
- Senator Grace O'Sullivan. Secretary put it in her diary
- Billy Kelleher, "I would hope to be in a position to attend. However as it is too far out for the Dáil schedule I cannot give you a firm commitment incase it clashes with my Dáil obligations but all going well I expect to be able to lend my support. In the meantime I will submit Parliamentary Questions."
- Jackie Cahill
- Jack Chambers has added the date in his diary
- Eugene Murphy will come out to meet us
- Gino Kenny will definately come out to see us as he knows what a serious illness M.E. is.
- Colm Brophy
- Katherine Zapone's secretary will let her know
- Sean Canney Galway East will try to come and meet us
- Brendan Ryan -happy to come out and support us
- Kevin "Boxer" Moran "if his schedule permits him to meet you on the day, he will"
- John Lahart "thanked us for bringing this to his attention and wants us to make contact with him again closer to the date and he will be able to confirm if he will be able to attend our demonstration.
- Richard Boyd Barrett will come out to see us
- Brendan Griffin
- Eoin Ó Broin TD: I have put the protest in my diary and will do my very best to attend.I will also raise the issue of funding and supports for people with ME with the Minister for Health and will Sinn Féin Health spokesperson Louise O'Reilly TD. If there is anything else you can do for me please do not hesitate to ask.
- Brendan Ryan. Happy to come out and support you.
- Robert Troy. Happy to meet and discuss
- Catherine Murphy. We will see you on the 11th.
- Simon Harris (minister of health) "intends to arrange a meeting with representatives of the group, as a reply to one of the TDs PQs, but as yet has not agreed to meet us on the day"
- Richard Bruton: Due to Government Business and an extremely heavy volume of engagements Minister Bruton is unfortunately unable to accept your kind invitation. He has asked me to convey both his apologies and best wishes.
- Ruth Coppinger will be there.
- Mattie McGrath 'will do his best to attend
- Roisin Shortall will come out to meet us and is raising a PQ as well
- Eamonn Ryan and others from Green Party will come out to meet us
- John Curran: I do hope to attend this demonstration and offer support for your campaign
- Catherine Martin: I would be delighted to come out to the demonstration on the 11th and I look forward to meeting and talking with your then.
- Bobby Aylward will be in attendance
- Carol Nolan is hoping to meet us